Life after Bone Marrow Transplant is transition Period between “Home Coming” to leading a life which is “new normal.” Dharamshila Narayana Bone Marrow Transplant Team is always there to help you to recover fast and stay healthy physically and emotionally.
Before leaving the hospital, patient and patient’s family will need to prepare the home and plan for your care giving needs.
The first months after transplant are very important for the healing process. Being prepared will help you stay healthy and reduce your risk of getting infections.
Any of the following sign or symptoms of infection should be reported immediately to your doctor or BMT coordinator. You have to watch for the following signs and symptoms:-
Visitors at home are allowed but they must be carefully screened. Family and friends should not visit if they are ill. Visiting children have greater chance of carrying contagious diseases because they are more exposed to them in the school environment. Chickenpox, measles, mumps and cold sores are of particular concern. Please report any known exposure to these diseases to the BMT doctor as soon as possible.
Make sure you take a bath or shower every day using non-irritating soap and shampoo. It is important to clean the groin and the arm-pits every day. If skin is dry apply Vaseline or any other approved moisturizer to the skin. Protect your skin from the sun, especially if you had radiation or have GVHD.
Follow these guidelines: -
You will still need medications at home. Your nurse and the doctor will explain the medication to you. Before you leave the hospital, please be sure that you understand what all the medications are for and how to take them.
Some of these medications can be expensive. Before you are admitted, it is important that you discuss your financial condition with he BMT doctor to make sure you can afford that these medications.
Unlike solid organ transplantation, you do not need to take medicines to suppress your immune system for the rest of your life. If there is no GVHD or infections, all major medicines are stopped by one year. You only continue with one antibiotic to prevent certain infections.
You now have a new immune system and all the major vaccinations you had as a child would need to be repeated 6 months to one year after the BMT. You should not take any ′LIVE′ vaccines such as BCG or POLIO. You should also not come in contact with those children who have had these vaccines in the last 6 weeks.